A few months back I did a post about little Trever who was in need of a bone marrow transplant.He was born with a genetic auto immune disease called IPEX.
There is only 50 documented cases of this disease.
Everyday of his life was a fight.
He was given until Christmas of 2010 to live if he was unable to find a donor.
They needed a perfect match.
After lots of searching for a perfect match and then settling for a not so perfect match Trever began doing all the prep that is required when you have a bone marrow transplant.
Once again he would have to fight....fight really hard.
Trever's first transplant didn't take.
So they tried again.
Trever had been doing fairly well....all things considered.
Unfortunately Trever contracted pneumonia in mid-June. Since his body has no ability to fight infections on his own it does not take much to make him seriously ill. It also does not take much time.
In a matter of days Trever was placed into a medically induced coma and put on a ventilator.
Trever's body shut down and his organs were failing.
On June 16, 2011 Trever's mommy had to make the hardest decision a parent should never have to make.
Krystal told the doctors it was time.
She asked them to unhook her baby from all the machines.
She wanted to hold her baby.
Trever passed from this life in the arms of his mommy on June 16th.
He was an amazing little boy.
He had a special spirit that touched many people's hearts.
He will be greatly missed.
I'm going to ask any and all of you out there in blogland that if you have the financial ability to make a donation to the bank account that's been set up for Trever and Krystal that you will.
Krystal has been a single mom Trever's whole life and has not been able to work due to Trever's serious health condition.
No life insurance company would cover Trever because it was always just a matter of time...
Trever was Krystal's entire life.
She had no spouse and no other children.
Her days, weeks, months and years were spent trying to save her son.
At times like this I am so so grateful for my faith and my beliefs.
Trever is ok now and one day him and his mom will be reunited.
Trever will have the chance to have a healthy body and a full life.
Trever is ok now and one day him and his mom will be reunited.
Trever will have the chance to have a healthy body and a full life.
But even knowing all these things my heart breaks for Krystal.
A young woman in her mid 20s has experienced more pain and heartache than most will have in their entire lives.
She is amazing.
A blog has been set up in memory of Trever.
It has the banks information on it for donations.
